Saturday, 7 November 2015
Week 7
Hi guys. I've been alright so far. Just been getting tired more easily and having a weird sleeping schedule at the moment. Been off the chemo drugs since last week. Feeling almost normal. I've just been thinking of why I am choosing who to tell my condition to. I guess I only want to tell the people who will actually give two fucks about me. And also that's another reason why I don't want others to know because when I find out that they know I have cancer and that they don't even bother sending me a message, it just feels so disheartening. I mean really. No matter how busy you are, if you find out someone you know has cancer, won't you even send one message? And that's why I am ok with SL finding out from HY cause she had the decency to send me a message. And also AN finding out from someone cause she came and visit. But to those who knows but didn't even send a message, you guys don't have a heart... Sadly. So yep hope those who knows keeps this to yourself cause I don't need more of these whackos who don't give two fucks. Thanks! Love you guys.
Saturday, 31 October 2015
Last Weekend, Things Felicia Says #2, Friyay
Last Weekend
Hey guys, sorry about the delay in the update. I should really be more diligent about this. Lots of things happened in the past week or so but mostly I've been caught up playing DotA. Firstly, last weekend Pearl and Khang came to visit. Pearl is my housemate in Newcastle and Khang is a handsome Viet guy I met in Newcastle. Both of them are doing medicine. Argh I just remembered that I forgot to take a photo with them. They came with so many gifts that I am still reeling in surprise till today at the amount of love I am receiving. I really appreciate all the gifts that has been sent so far as well as all the visits from you guys. Thank you so much! Pearl and Khang bought kuih lapis from Kuching, an MU jersey (OMG!), 2 DotA mini plushies, and 2 Pineapples (Pearl thought I cannot eat pineapple tarts which are my favourite cookies so that is 2nd best). I feel so spoiled by you guys!! Got some photos here. ;')
Here is the MU jersey and the DotA plushies <3 |
Thanks to Elise too for visiting me earlier this week and passing me Felicia's clothes from Australia!! :) It was nice to see you and thanks a lot for coming!
Things Felicia Says
Earlier in the week, Felicia and I were skyping and talking about me eating outside food. I was saying it is safe because we have been eating at the shop for a long long time. Almost 20 years and still nothing. And she said it doesn't matter because it only takes one time and it would make me get infected. There is some truth in what she says too of course but I came up with a metaphor saying," if you have sex with the same girl for 20 years, isn't it very unlikely for you to get an STD?" ;)
Weekly Updates
I went to see the doctor twice this week. On Monday was to get one of my chemo drugs and also to just check on my bloods to see if my white cell counts are high or not. I also am on a booster jab to increase my white cell counts now and today will be my last jab for this cycle I think. I am going to be doing a PET/CT scan to check on the progress of my cancer on the 9/11. Besides that, I am generally feeling alright. Been having a bit of back pain here and there as well as quite a lot of tummy pain but so far it is tolerable. My appetite has not been affected much and I think I am gaining more weight. Seems some people have noticed too haha. Yeah I have been eating heaps here. I am now 70kg from 64kg when i was in Australia.
Friyay
So yesterday was Friday and the gang (Kev, Ky, Jay, Ju, June, Fish, Kai, Huihun) came over to play ps3 and hang out with me. I forgot take pics again. Argh. Thanks a lot for coming guys. And long time haven't seen you huihun. :) I really need to remember to take more pics! I got another surprise though. (This week has so many surprises for me and I cannot thank you guys enough) This surprise is from UK and it is a really heartwarming postcard from none other than Li Chun!! I cannot believe you actually coloured them and this is only the first one! I can't wait for the rest. Thank you so much Li Chun and it has definitely made my week. Or month. :D All the best in your job interview ok?
Friday, 23 October 2015
Weekend, Anniversary and 2nd cycle
Hey guys, so last weekend I was just playing catan with Feebs, Ben, Kai, Kev and June. Really fun rounds we had on sat and Sunday night :) hope we can get to play the new expansion soon !! :) fritz, Ju and ky came to watch football as well. Was a good weekend before the dreaded Monday. Anyway Monday wasn't too bad. Had 5 pints of drugs dripped into me and had to stay in the ward for a night because they couldn't finish dripping everything in before they closed the day care centre. I didn't feel too bad besides some tummy pains here and there. Tuesday was also my 5 year anniversary of Felicia and I being together. It has really been a wonderful journey so far with little bends on the road but we pulled through to the 5 year mark!! On top of that, doing 2.5 years of LDR. So I facetimed Felicia while in the ward. I basically had the room to myself even though there was an extra bed for another patient because the previous patient left in the evening. I also managed to coax my parents to go home haha. So they only came back at 7am the next day which is on the Tuesday. I got discharged from the ward on the Tuesday evening.
Wednesday, we found out somehow that the ward nurses and doctors only gave me one pint of medication (supposedly 2) on Tuesday which means they sorta messed up the schedule set up by my doctor. I can sorta guess my doctor was furious when she found out haha. The nurse and the doctor is gonna get it real bad. From what I hear from the daycare nurses.
Foot of my bed and the little table thing |
The other bed |
Thank you so much Val and Viv for the fruit basket. Haha I was suppose to get a parcel for my mum and thought I asked my dad to collect it. But ended up it was this! Surprise, surprise!
This post has so much for me to say. Haha. Over the past week or so, I have been playing a lot of Dota. Thanks fish, ky, Kai, Jay and Ju for accompanying me to play Dota.
Hi again Cia bii... Sorry that I do not put you in front of my selfish brain that only thinks of himself. I have to learn to know when I am wrong and not be so stubborn all the time. I hope you can go through with this slowly with me as it is a bad part of me that needs to be weeded out.
Just some updates on what has been happening to me over yesterday and today. I have sore gums and bleeding gums which started yesterday. My doctor said it is part of chemo. A side effect called mucositis. That means inflammation of mucosal membranes which is gums, stomach mucosa, and a lot of other places. But for now, mine is only bleeding from the gums and it makes eating food a right pain in the arse (in this case mouth). Appetite is sorta weird. Like there are things I don't really wanna eat and I hate repetition of food. My body is always feeling warm. Nurses say i just need drink more water and hydrate myself more.
Okay guys. Toodles. Will try to update more. I'm getting a bit lazy. I need a spank in the butt to get moving with writing. Now I'm writing this ending while sitting on my throne in the toilet. ;)
Cause i owe you a nice pic :) |
Thursday, 15 October 2015
Awal Muharram
Happy Awal Muharram to all my Muslim Friends. I am a couple of hours late because I haven't been getting any visitors lately so nothing much to write about haha. As it was a public holiday, quite a number of my friends came to visit. Thanks for coming Kai, ky, June and Kev. Ky came first and played some Dota on my laptop. I just remembered I need to change my hot keys back again. Haha. Luckily I haven't played any Dota games yet. June and Kev came and we played catan the whole afternoon! 3 games of the normal catan and 1 game of catan seafarers. I actually have not opened the cities and knights expansion yet which is going to make it more fun. Also can't wait for the 5-6 player expansion that my bro is going to bring back from Sydney next month. ☺️
L-R : Kai. june, ky and kev |
I also have not been skyping much with Felicia... She's been a little busy lately. I've been busy too actually. Hope we can Skype a little more.... Besides that, I have been waking up at 3am everyday. No idea why. Posting this update at 2.50am is proof enough that this is a real problem for me. Generally, I have been feeling better since Monday. Been prescribed a proton pump inhibitor on Monday which helps reduce the acidity of my stomach and I have been getting much less tummy aches. However, I have been getting running nose every time I go downstairs to my living room. Seems that I'm allergic to something there. Eyes get itchy and heavy with my nose all dripping is not fun...
Till next time!
Till next time!
Monday, 12 October 2015
Monday #3
Yesterday night, I managed to get out of the house after such a long time. Went out with Hy, Ju, Kev, Bea, Huihun, Jay, and Fish. It was a fun night out and we went to Olfactory Bulb. (I am still laughing at this name seriously) No idea why cafes have to have such hip names. Here are some pics from last night. The coffee was so-so but the concept was quite interesting. It is a cafe which emphasizes on coffee mixology and they mix them with alcohol. The alcoholic drinks were pricy though.
Some cocktail drink of Hy's |
Some alcoholic waffle for the alcoholics Hy and Bea. |
Seems like a cool shot that i took of the "Bar" |
Cute fat Asian boy and his waffle |
My matcha latte |
They gave us a little bookmark thing to draw on and hang on their wall |
Guess where everyone is. XD |
This morning, I was reading my Facebook newsfeed and I came across this. I am pretty sure I've read this before and it is just sorta an Aesop fable kinda thing where you learn some life lesson from a short story. This story was about a husband initially thought to be selfishly leaving his wife on a sinking ship and his wife shouted to him to take care of their daughter. Yeah read it for yourself. It is quite short and sweet.
http://www.upmoments.com/husband-pushes-wife-to-save-himself/
Today's random story started with me going downstairs and looking around my fridge. My mum asked me,"What are you looking for?" "I think I dreamt my friend gave me pineapple tarts," I replied. My mum laughed and said, "Yeah, I think you were dreaming." I came across the pineapple tarts and said, "There! Haha." "Oh yeah I didn't get a chance to see what was inside the plastic bag," Mum said. "YES!" I cheered, "I wasn't dreaming after all!"
Went to hospital today to get my endoscopy result and to see my doctor. The endoscopy result was just some chronic gastritis which is not caused by any infection or malignancy. My white cell count dropped which means I definitely can't go out anymore and less outside food too. Doctor said that I will be starting chemo on Monday 19/10 and she will need to recalculate the dosages again as my white cell count has dropped. Really dreading that Monday. That's it for today. Hope you like today's post!
P.S. Thanks viv, val and von for the pineapple tarts XD
Sunday, 11 October 2015
Sunday Bumday
Hey! So I couldn't get to go to Hong's Birthday cause of some stupid allergy to my sofa cover. Was sneezing like crazy and all while playing Catan with June and Joyce. Thought I was coming down with the flu but it wasn't. Thankfully today I'll get to go out tonight after dinner to see Hong and the gang. Just felt bad and disappointed for missing out on her birthday party after saying that I'll go and also cause I was stoked to go out after more than a week at home.
And June won 2 games of Catan broke my win streak. HAHA. He's so going to get it next round. Tonight going to go to Olfactory Bulb. (super funny name) Some cafe in Kota D'sara. Will post something if it is worth posting about as I havent had good coffee in such a long while. Today such a good day for me I won 10 games in a row of dota haha. And got to play with Jono and his lil bro. Pretty much owned all the games we played eventhough they were playing with lag from Mauritius.
I didn't get to Skype Felicia much these past few days though. Felicia's birthday cake baked by her friend in UK!
Overall, I've been feeling fine. Just been having this slight tummy ache now and again. Going to go see the doctor on Monday to check up on the results of the endoscopy and this tummy ache (tube stuffed down my throat to see my stomach). Off meds for another 7 days. Counting down to the dreaded day... Fritz sending yummy food pics from Johor! Scumbag.
Kaj in Singapore working... Wishing him all the best there ! Picture with him and KY in Singapore.
Okay that's it guys, till tomorrow I'll update on any results and on olfactory bulb! haha still laughing at it.
Hong and the bois |
Hong and the gals |
I didn't get to Skype Felicia much these past few days though. Felicia's birthday cake baked by her friend in UK!
Felicia's cake |
Overall, I've been feeling fine. Just been having this slight tummy ache now and again. Going to go see the doctor on Monday to check up on the results of the endoscopy and this tummy ache (tube stuffed down my throat to see my stomach). Off meds for another 7 days. Counting down to the dreaded day... Fritz sending yummy food pics from Johor! Scumbag.
Otak-otak Fritz sending yummy food pics |
Kueh cap Fritz from Johor |
Kaj in Singapore working... Wishing him all the best there ! Picture with him and KY in Singapore.
Kaj and ky in singapore |
Saturday, 10 October 2015
Thursday Visits
Hi again, I've been a day late with my updates. Thursday night Von,Viv,Val, Ky and Roy came to visit. haha it has been such a long time since you guys came to my house huh? The last time was post SMKDU prom. Right? haha that was sooo long ago. Anyway thanks for coming. And talking about hepatitis. This is an article about hepatitis C if you guys are interested.
It is 4am Saturday morning and i just woke up. It seems as if my sleeping schedule is messed up. Sigh, I can only take naps throughout the day. Didnt do much yesterday besides skyping with Jono and Jackson while playing Dota with them. 85minute Dota game :(
Today is suppose to be Hong Yen's birthday dinner with everyone. Hope that I feel well enough to go. :) Can't wait to actually get out of the house.
Royz, viv and von |
Val, Me, Von. Viv (bot to top)! |
Friday, 9 October 2015
Felicia's Birthday
To Felicia,
Happy Birthday to the most special person in my life! Baby, it has been wonderful to have you in my life and to celebrate all these events with. Thanks for staying with me through all these years and for being with me in my most dire time of need. I hope that you enjoy your birthday in Leeds and also your present from me. Please take care of yourself over there in UK and I can't wait to see you after my treatment so that we can make more memories together! I love you always. Thanks Huihun and Kevin for all your help in getting the present :)
Happy Birthday to the most special person in my life! Baby, it has been wonderful to have you in my life and to celebrate all these events with. Thanks for staying with me through all these years and for being with me in my most dire time of need. I hope that you enjoy your birthday in Leeds and also your present from me. Please take care of yourself over there in UK and I can't wait to see you after my treatment so that we can make more memories together! I love you always. Thanks Huihun and Kevin for all your help in getting the present :)
Newcastle Beach Lighthouse |
Max Brenner |
Grand Pacific Drive |
Harajucube i think. That square dessert place. haha |
Thursday, 8 October 2015
Catan, Visits, Hair loss
Hi again guys. Short post. So I am currently on my 2 weeks off of my chemo and yesterday I received my new catan expansion sets. :D It came while Razlan and Nidhish were here visiting and we sat down to play it straight away. Haha. Yesterday I also shaved my head. I attached a picture for all of you to laugh. :) I also got myself a new cap. Thanks wil and siang for coming to visit and playing catan with me on Tuesday!
So far I've been feeling okay. Just dreading the end of these two weeks.
Thanks Fish for the cap! Have a safe flight to UK, Razlan.
See ya guys soon!
New Cap by Nike |
Monday, 5 October 2015
Another Monday
Another day, another Monday... I guess I am starting to dread Mondays. Monday is going to be the worst dose of drugs every cycle. :/ Monday is going to be follow-up day. Sigh. Yesterday, I received my first major hair fall of many to come. Saying bye to my hair is always a little depressing. Especially if it keeps dropping this way. I will be shaving it off today too.... Size 3? One more reason to hate Mondays... :(
On a lighter note, Xin Ni and Wesley visited me at my house yesterday. Was fun catching up with them after such a long time. Wishing you both the best of luck (and wealth) in all your endeavours. Bummed around at home all day playing Cities. Lol. BUT Joyce and June, I bought the Catan expansion sets already. Time for a session when I get it tomorrow. :D
I am now at the hospital waiting for blood tests and the doctor's appointment. Hope it won't take too long. Kinda bored being here and plus Felicia is asleep which means not many people else to text. And Hong Yen! I can go out for dinner on Saturday. :) See ya guys then!
Friday, 2 October 2015
Updates
Hey guys. Haven't been writing much so just want to leave some updates on how I am doing. Was totally caught up playing games on steam. 😣 I've been feeling really good lately as I am off the chemo drugs for 2 weeks till the following Monday. Doctor also said I could go out and enjoy as my white cell counts are normal. Meaning that my risk of infection is probably the same as everyone else's. Only minor hiccup was my iron which is very low and the doctor was worried of me having a bleed somewhere.
So right now, I am in the endoscopy waiting room getting a tube stuffed down my throat into my tummy to have a look inside. While I am writing this, a Malay gentleman started talking to me and asking about me. I think he is a little bit gay. No idea. Haha. Hope he doesn't contact me. He even asked for a selfie but I refused. ✌️His English is really good though.
Yesterday, I went for dim sum with Ju, fish, June and Kai. It was my first dim sum meal since I got back and it was really yummy.
Day before, Nidhish and Razlan came over in the afternoon after their hospital placement. We chatted for a bit then played catan. Glad that they enjoyed it. :)
In the night, Xianhui and mari came for a visit. What initially was thought to be a board game night turned into us talking about mari's interesting work. I'm glad she's passionate about it albeit tiring. Hope she'll enjoy the best and be the best in her career!
Monday, 28 September 2015
Grandma
Hi Ah Ma,
Hope you will get the chance to read this post when my mum actually gives me the permission to tell you. First of all, I know you would be hurt and scared that we did not tell you immediately. Mum is only doing it because she cares about you so please do not take offense or get angry with her. I agreed with mum not to tell you as it was going to be a long process and I did not want you to be worrying about me when you have to concentrate on your health as well.
I do love you very much Ah Ma and maybe I would get a chance to come over and visit more often even during my treatment. So far I have finished my first week of treatment and today, I will be taking my last drugs for this cycle. Hopefully, it would not be too harsh on me today. Felicia, my friends and family are very supportive and helpful throughout this process and I hope this can assure you I would get through with this or even I might already have fought this off by the time you read it. *fingers crossed*
I miss you and will look forward to the time we can chit chat again at your place or even eat your favourite banana leaf again. Take care Ah Ma.
Your Grandson
P.S. I am amused by the way we talk in English when most grandsons/daughters talk to their grandma in their dialects. :)
Hope you will get the chance to read this post when my mum actually gives me the permission to tell you. First of all, I know you would be hurt and scared that we did not tell you immediately. Mum is only doing it because she cares about you so please do not take offense or get angry with her. I agreed with mum not to tell you as it was going to be a long process and I did not want you to be worrying about me when you have to concentrate on your health as well.
I do love you very much Ah Ma and maybe I would get a chance to come over and visit more often even during my treatment. So far I have finished my first week of treatment and today, I will be taking my last drugs for this cycle. Hopefully, it would not be too harsh on me today. Felicia, my friends and family are very supportive and helpful throughout this process and I hope this can assure you I would get through with this or even I might already have fought this off by the time you read it. *fingers crossed*
I miss you and will look forward to the time we can chit chat again at your place or even eat your favourite banana leaf again. Take care Ah Ma.
Your Grandson
P.S. I am amused by the way we talk in English when most grandsons/daughters talk to their grandma in their dialects. :)
Saturday, 26 September 2015
Thoughts this morning
Syed Azmi
I was just scrolling through facebook and came across this post from Friends of BN. https://www.facebook.com/frensofbn/posts/10153388667569998
I hope that you guys do know who Syed Azmi is. Well his most notable work has been the "I want to touch a dog" event which created a big stir in the ever critical and sensitive Muslim community in Malaysia. What most Malaysians do not know about Syed Azmi is that he is a charismatic, charitable and caring person who has been contributing to the society by organizing events such as soup kitchens, giving to the homeless and more. He has been posting in the infamous TTDI facebook page for a long time always with his tamakpahala hashtag up till the fateful day where he left the group to avoid repercussions for his "I want to touch a dog" event. Just so you guys know, the name of the event is a little misleading for its actual objectives. He created the event for Muslims to be more comfortable being nicer to dogs and also to teach them how to wash themselves after touching a dog. He invited Imam speakers if I am not mistaken to the event to give talks.
A big confession before I go any further, I have not met him or been to any of his events before but I have been reading about his events and seeing pictures on Facebook for quite some time. Most of my time in Australia actually. I just think that this guy is a real hero and he deserves every bit of my respect. I do not think he will be able to read this but if he does, "Keep up what you're doing and don't ever doubt it!"
Catan
Since i'll be under house arrest for 5 months. Does anyone want to play Settlers of Catan with me? :) I will be buying the expansion packs I think and I think it would be a fun thing to do it every now and then. Please comment if you would like to be part of my Catan group!
I was just scrolling through facebook and came across this post from Friends of BN. https://www.facebook.com/frensofbn/posts/10153388667569998
I hope that you guys do know who Syed Azmi is. Well his most notable work has been the "I want to touch a dog" event which created a big stir in the ever critical and sensitive Muslim community in Malaysia. What most Malaysians do not know about Syed Azmi is that he is a charismatic, charitable and caring person who has been contributing to the society by organizing events such as soup kitchens, giving to the homeless and more. He has been posting in the infamous TTDI facebook page for a long time always with his tamakpahala hashtag up till the fateful day where he left the group to avoid repercussions for his "I want to touch a dog" event. Just so you guys know, the name of the event is a little misleading for its actual objectives. He created the event for Muslims to be more comfortable being nicer to dogs and also to teach them how to wash themselves after touching a dog. He invited Imam speakers if I am not mistaken to the event to give talks.
A big confession before I go any further, I have not met him or been to any of his events before but I have been reading about his events and seeing pictures on Facebook for quite some time. Most of my time in Australia actually. I just think that this guy is a real hero and he deserves every bit of my respect. I do not think he will be able to read this but if he does, "Keep up what you're doing and don't ever doubt it!"
Catan
Since i'll be under house arrest for 5 months. Does anyone want to play Settlers of Catan with me? :) I will be buying the expansion packs I think and I think it would be a fun thing to do it every now and then. Please comment if you would like to be part of my Catan group!
Friday, 25 September 2015
Friday Night !
Have been bumming around most of the day. Weighed myself in this morning and I am 69.5kg. I was 64 for the past few years so that's really good news. People are wondering if I have any other symptoms. I only have tiredness and a bit of nausea at the moment so I feel everything is going well so far.
Had a short skype catchup session with Preman. Nice to hear you're doing alright in Ireland and good to hear you telling stories again. Always makes me laugh!
Had a short skype catchup session with Preman. Nice to hear you're doing alright in Ireland and good to hear you telling stories again. Always makes me laugh!
Another skype session was with my Felicia. Never failing to put a smile on my face. :D Love you loads!
Fritz, Cute Fat Asian Boy (Ju), Kam Yew, Kai and Jay came to visit and stayed for more than 2 hours. Touched for them missing out on a Friday night out to come talk to me at home. :') Love you guys. And Ju you're still in all the pictures! Sorry kai forgot to take a pic with you!! :(
Sitting : R-L : Cute Fat Asian Boy, Me, KY Standing : R-L : Fritz, Jay |
Just really appreciate all the well wishers everyday and knowing that I am in your thoughts makes me feel that I can take on anything. I'll try to get an air cond downstairs and more soft drinks. Haha.
P.S. Thanks for the mooncake LHH! :D My favourite!
P.S. Thanks for the mooncake LHH! :D My favourite!
Drugs and Drugs
Disclaimer: This is for my fellow medically related friends who might understand a bit more on medical terms.
Right now, I am on a BEACOPP chemotherapy regime which is one of 2 types of chemotherapy regimes for Hodgkin's lymphoma. The other one is ABVD which is a milder chemotherapy. The BEACOPP regime that I am on right now consists of Bleomycin, Etoposide, Adriamycin (doxorubicin), Cyclophosphamide, Oncovin (Vincristine), Procarbazine and Prednisolone.
This BEACOPP regime has an escalated and a non-escalated BEACOPP. My first cycle is going to be the non-escalated one. Subsequent cycles should be the escalated BEACOPP. This regime was created in Germany and the German doctors favor this regime more than ABVD for most cases. ABVD is favored in most other countries as it is a tried and tested and older chemotherapy regime.
For this regime, Procarbazine and Prednisolone is to be taken for the first 14 days of this 21 day cycle of BEACOPP and the last 7 days as a recovery period where no drugs are to be taken.
I am in my first week currently and on my first day aside from Procarbazine and Prednisolone, I have taken Cyclophosphamide, Doxorubicin and Etoposide. Doxorubicin made me pee pink. hahaha. I felt really tired and no appetite after my 1st day. I slept like 4 hours right after reaching home and at night I tried to eat dinner and it was like eating plain paper. (Thanks Fritz, Mum and Felicia for encouraging me to eat!)
Second day, I only had Etoposide to be given to me aside from Procarbazine and Prednisolone. Felt really good and alright.
Third day, I had Etoposide aside from Procarbazine and Prednisolone and I am feeling almost normal just tired.
On Monday (28/9), they will be giving me vincristine and Bleomycin. I think this will be strong drugs and I would be feeling worse. But at least I am mentally prepared I guess.
Thanks for reading and I would change certain info here if there is any changes :)
Right now, I am on a BEACOPP chemotherapy regime which is one of 2 types of chemotherapy regimes for Hodgkin's lymphoma. The other one is ABVD which is a milder chemotherapy. The BEACOPP regime that I am on right now consists of Bleomycin, Etoposide, Adriamycin (doxorubicin), Cyclophosphamide, Oncovin (Vincristine), Procarbazine and Prednisolone.
This BEACOPP regime has an escalated and a non-escalated BEACOPP. My first cycle is going to be the non-escalated one. Subsequent cycles should be the escalated BEACOPP. This regime was created in Germany and the German doctors favor this regime more than ABVD for most cases. ABVD is favored in most other countries as it is a tried and tested and older chemotherapy regime.
For this regime, Procarbazine and Prednisolone is to be taken for the first 14 days of this 21 day cycle of BEACOPP and the last 7 days as a recovery period where no drugs are to be taken.
I am in my first week currently and on my first day aside from Procarbazine and Prednisolone, I have taken Cyclophosphamide, Doxorubicin and Etoposide. Doxorubicin made me pee pink. hahaha. I felt really tired and no appetite after my 1st day. I slept like 4 hours right after reaching home and at night I tried to eat dinner and it was like eating plain paper. (Thanks Fritz, Mum and Felicia for encouraging me to eat!)
Second day, I only had Etoposide to be given to me aside from Procarbazine and Prednisolone. Felt really good and alright.
Third day, I had Etoposide aside from Procarbazine and Prednisolone and I am feeling almost normal just tired.
On Monday (28/9), they will be giving me vincristine and Bleomycin. I think this will be strong drugs and I would be feeling worse. But at least I am mentally prepared I guess.
Thanks for reading and I would change certain info here if there is any changes :)
Thursday, 24 September 2015
Lunch, Visits, Skype
Lunch
Today best lunch in a long time. Reallyyyy yummy! Not in the pic was a bowl of sambal and one extra chicken :DDD
Visit #1 (KY, Ju, Kai)
Today best lunch in a long time. Reallyyyy yummy! Not in the pic was a bowl of sambal and one extra chicken :DDD
Visit #1 (KY, Ju, Kai)
Lunch (missing from the pic is a buttload of sambal and extra chicken) YUMMSSS |
Ju, Kai, Ky |
Shopping God, Kai, Me and KY |
Ju said he wants to be in all the photos. hahaha. Let's see if he will be since we missed Jay and Hun's photo. >< Nice catching up with you guys. And thanks for the fruits!
Visit #2 (Penny & Catan box)
Winner as usual = me. Haha, Thanks for the mooncakes penny!
Felicia's Bimbo Skype Moment
Felicia : *sings* Feels so cold right now
Andrew : Whut??
Felicia : You remember that Calvin Harris song? Feel so cold something something.
Andrew : -.- Feels so close la wtfffffff
Felicia : Oh yaaaaaaaaaaa! lololololo
Last night and this morning
I received a lot of well wishers last night and today. I really appreciate each and every one of you for your words of encouragement and support. I am feeling really good. Not getting tired so easily. Appetite is still good. I dont think i lost any weight at all and also I think the catheter thing is less painful now. I still hate it flapping about though so my mum is going to get some surgical tape to tape the damn thing down. Haha. To be honest, you guys have played a very big part in keeping my spirits up by talking to me normally and asking me how I am. I feel all the love and I cannot thank you guys enough.
Last night, skyped with Felicia and am very happy she is doing well at her placement in Halifax. Big shoutout to her friend Joshua for providing her a really cozy place to stay. Sorry about the not so stable skype as I could not find a comfortable position to sit and my hand cant hold my phone steady. :(
Rant of the day: Cannot eat bkt! Craving it so bad now.... I really would have tears of joy if I am eating it now. ;(
Rant of the day: Cannot eat bkt! Craving it so bad now.... I really would have tears of joy if I am eating it now. ;(
Julia!!! Get some food education!!! You are a Malaysian. Disgraceful! BKT is this !
Eeven, thanks for the support and was great catching up with you over facebook and reliving those good times in Taylor's and high school. :) Crashing into neighbour's car. hahaha
This morning however, Joyce came up with this super awesome idea to get a foosball table at home. Haha. I guess she hates the idea of being in front of the comp too much or something. Well hope someone can drop a comment on any supplier or sellers. :)
Jono. Feeling the love from Mauritius. XD
Thanks elise for the well wishes.
Lichun, xianhui, sunsiew, and ee chong! Thanks for the show of support.
Mari, you so funny haha. Never changed.
Vince bro always fun talking to you man. :)
Jono. Feeling the love from Mauritius. XD
Thanks elise for the well wishes.
Lichun, xianhui, sunsiew, and ee chong! Thanks for the show of support.
Mari, you so funny haha. Never changed.
Vince bro always fun talking to you man. :)
Felicia, Flights and Distance :(
How I Met My Girlfriend
This post is going to be long. :P Just telling some backstory on how we met and how we came to be together... I know some of you know the story already but I am just putting this out there for everyone as I want people to know how important Felicia is in my life. :')
We hearken back to those ancient times 5 years ago (dafuq) when I was in IMU in my first week. I was just casually strolling around being divided into groups for orientation when I saw this girl in a simple cream dress with heels. She was walking behind her group looking absolutely ravishing and I wondered whether I was the only one looking. I would bet a lot on me not being the only one. Hahaha. Anyway that was my first sight of her. To be honest, I did not expect what was coming next. BUUTTTTT... the very next day, she was in my PBL! (small group teaching sesh every week) I was like this is awesome! So much easier for me now. So I faked a "post PBL discussion" hahahaha. To discuss about dividing learning targets and when we're late, we can contact each other *winkwink*. And guess what? I got her number! I guess that's the smoothest and most non-creepy way of doing it. Haha. But i did use my resources eh? So we started messaging and decided to fetch her to one of the IMU orientation night things. And we did not really do much there to be honest. Just had a short chat with her then decided to actually plan a proper date to watch a movie at One Utama.
This was the most embarassing date tho.... On that night, I picked her up. I guess it was awkward enough that I had to park my car a distance away as a FUNERAL was going on nearby her house and blocking my car from entering into her road. hehe bad luck bad luck. I walked her from her house to the car with people at the funeral staring. -.- While travelling to One Utama, I could tell we were hitting it off in the car by the conversation we were having. There was no awkward silences or any sort of kinks in our link. However, when we reached the cinema, I reached into my wallet to grab our movie tickets... I normally keep my movie tickets in the same compartment as my money. I was searching for it and nope.... Cant find it. I was like shit.... First date forget movie tickets gg... But surprisingly, Felicia just laughed it off. And she actually was still laughing even when I parked outside my house to pick the tickets up from my mum. Needless to say, it was embarassing but up till now, Felicia still laughs at it. :(
Short message to Felicia : I know we've been going through some tough times lately and I just want to assure you that we will get through it. I know I have not been very appreciative lately and that is my fault. But I want you to know I do appreciate you very much. Looking forward to your birthday!!! <3
Flights
Couple of months back, I bought a ticket through STAtravel which is a realllyyyyy good place to buy tickets from for students by the way. I really recommend them and their customer service is awesome. Well if you're in Australia. I was suppose to visit Felicia in Nov and possibly tour Europe as well. (Lichun remember I asked you about it? haha) The decision to cancel the ticket was due to the fact that my treatment wouldn't be short and I don't know when the treatment might end. I hope that I would get to finish my treatment before your graduation though, Felicia.
Distance
Many people wonder how me and Felicia did LDR for a long time. Honestly, it is not easy. There has to be a level of trust, a level of love and a lot of effort. I do know me and Felicia have made a lot of effort in making LDR work and I am glad that we have this part of our journey to tell our kids or friends. I still cannot wait for us to be reunited again and this is going to be the hardest year because we will only be seeing each other next July and also this year will be the hardest year for us because of lymphoma. We skype as much as we can. And text as much as we can. I guess sometimes distance gives us the time to reflect on stuff alone and gives both of us some space for our own lives. And to make things a lot easier, both of us are busy with medicine and that takes up a lot of time and effort which also gives us less free time to "mess" around. Haha.
To conclude, this post is for Felicia but it is also for people to appreciate what they have and a reminder to hold on to what is important. @ju @kev
This post is going to be long. :P Just telling some backstory on how we met and how we came to be together... I know some of you know the story already but I am just putting this out there for everyone as I want people to know how important Felicia is in my life. :')
We hearken back to those ancient times 5 years ago (dafuq) when I was in IMU in my first week. I was just casually strolling around being divided into groups for orientation when I saw this girl in a simple cream dress with heels. She was walking behind her group looking absolutely ravishing and I wondered whether I was the only one looking. I would bet a lot on me not being the only one. Hahaha. Anyway that was my first sight of her. To be honest, I did not expect what was coming next. BUUTTTTT... the very next day, she was in my PBL! (small group teaching sesh every week) I was like this is awesome! So much easier for me now. So I faked a "post PBL discussion" hahahaha. To discuss about dividing learning targets and when we're late, we can contact each other *winkwink*. And guess what? I got her number! I guess that's the smoothest and most non-creepy way of doing it. Haha. But i did use my resources eh? So we started messaging and decided to fetch her to one of the IMU orientation night things. And we did not really do much there to be honest. Just had a short chat with her then decided to actually plan a proper date to watch a movie at One Utama.
This was the most embarassing date tho.... On that night, I picked her up. I guess it was awkward enough that I had to park my car a distance away as a FUNERAL was going on nearby her house and blocking my car from entering into her road. hehe bad luck bad luck. I walked her from her house to the car with people at the funeral staring. -.- While travelling to One Utama, I could tell we were hitting it off in the car by the conversation we were having. There was no awkward silences or any sort of kinks in our link. However, when we reached the cinema, I reached into my wallet to grab our movie tickets... I normally keep my movie tickets in the same compartment as my money. I was searching for it and nope.... Cant find it. I was like shit.... First date forget movie tickets gg... But surprisingly, Felicia just laughed it off. And she actually was still laughing even when I parked outside my house to pick the tickets up from my mum. Needless to say, it was embarassing but up till now, Felicia still laughs at it. :(
Short message to Felicia : I know we've been going through some tough times lately and I just want to assure you that we will get through it. I know I have not been very appreciative lately and that is my fault. But I want you to know I do appreciate you very much. Looking forward to your birthday!!! <3
Flights
Couple of months back, I bought a ticket through STAtravel which is a realllyyyyy good place to buy tickets from for students by the way. I really recommend them and their customer service is awesome. Well if you're in Australia. I was suppose to visit Felicia in Nov and possibly tour Europe as well. (Lichun remember I asked you about it? haha) The decision to cancel the ticket was due to the fact that my treatment wouldn't be short and I don't know when the treatment might end. I hope that I would get to finish my treatment before your graduation though, Felicia.
Distance
Many people wonder how me and Felicia did LDR for a long time. Honestly, it is not easy. There has to be a level of trust, a level of love and a lot of effort. I do know me and Felicia have made a lot of effort in making LDR work and I am glad that we have this part of our journey to tell our kids or friends. I still cannot wait for us to be reunited again and this is going to be the hardest year because we will only be seeing each other next July and also this year will be the hardest year for us because of lymphoma. We skype as much as we can. And text as much as we can. I guess sometimes distance gives us the time to reflect on stuff alone and gives both of us some space for our own lives. And to make things a lot easier, both of us are busy with medicine and that takes up a lot of time and effort which also gives us less free time to "mess" around. Haha.
To conclude, this post is for Felicia but it is also for people to appreciate what they have and a reminder to hold on to what is important. @ju @kev
1st year Anniversary 20/10/2011 |
IMU Prom 2012 |
UK 2013 |
UK with Lichun Dec 2014 |
July 2015 |
Wednesday, 23 September 2015
First Week
I just realised I have so much to write till my brain cannot compartmentalize things. I'll just write a short blog post on my first week here. So the first day was pretty shit Monday.... Ew I had 3 drugs dripped into me as well as countless oral drugs. And to top things off I did not have a central catheter in yet so there was some danger of the drugs leaking out of my veins. That was pretty bad. So after the whole day in hospital, I came home and slept for 4 hours i think. Just knocked out like a light. When i woke up it was 9.30 and I hadnt had my dinner. My mum was forcing me to eat so I went down to eat dinner. Dinner tasted like sawdust. It was so bad. I had no appetite and was feeling so tired. Thanks mum, fritz, kai and felicia for pushing me to eat stuff to maintain my energy. Love you! Oh and not forgetting, thanks mum for all the water !!! haha
The next day, I felt so much better. Like I had appetite and wasnt too tired and was looking forward to chemo because it was only gonna be one drug dripped into me. End up spending 3 hours there cause the drug was dripping in so slowly -.-" Anyway I went home and was pretty perky and okay and even dota-ed a few games and skyped with Felicia. And i felt really okay. Slept around 10-ish.
This morning(3rd day) had to wake up early as I was going to get my central catheter in. This would be in for about 2 months or more. Wasnt sure how long they wanted to keep it in. And i went there at 7. Managed to get my appointment pushed forward xD. And also when I was in the theatre lying down all prepped and ready to go, they asked me where's my PICC (the device). I was like WTF? Apparently, I was supposed to be told to buy it before going for the minor surgery thingy. But i didnt so my mum ended up having to rush down to the pharmacy to buy it and get it done. It cost about RM700 and the procedure was RM300. Oh while we're on the subject of prices, my chemo everyday costs RM30. IT IS REALLY CHEAP! I mean I expected way more even for government standard. LOL, Anyway today went as well as yesterday, I am now up. :) Fish and ju came to visit and I am waiting for jay, hun and kai come tonight! Really grateful for the support guys. Thanks again. And also thanks to my mum for following me everywhere! And dad for driving me. ;')
The next day, I felt so much better. Like I had appetite and wasnt too tired and was looking forward to chemo because it was only gonna be one drug dripped into me. End up spending 3 hours there cause the drug was dripping in so slowly -.-" Anyway I went home and was pretty perky and okay and even dota-ed a few games and skyped with Felicia. And i felt really okay. Slept around 10-ish.
This morning(3rd day) had to wake up early as I was going to get my central catheter in. This would be in for about 2 months or more. Wasnt sure how long they wanted to keep it in. And i went there at 7. Managed to get my appointment pushed forward xD. And also when I was in the theatre lying down all prepped and ready to go, they asked me where's my PICC (the device). I was like WTF? Apparently, I was supposed to be told to buy it before going for the minor surgery thingy. But i didnt so my mum ended up having to rush down to the pharmacy to buy it and get it done. It cost about RM700 and the procedure was RM300. Oh while we're on the subject of prices, my chemo everyday costs RM30. IT IS REALLY CHEAP! I mean I expected way more even for government standard. LOL, Anyway today went as well as yesterday, I am now up. :) Fish and ju came to visit and I am waiting for jay, hun and kai come tonight! Really grateful for the support guys. Thanks again. And also thanks to my mum for following me everywhere! And dad for driving me. ;')
Cathether >< (PICC) |
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